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Il s'agit du manuel utilisateur du site à sa version 1.1 du 12/04/08 You can find here the user manual release 1.1 delivered on 2008/04/12. ..... Download
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Diaporama presentation, about creation of a Database or a network with defined entry conditions (Privacy law protection, national validation of practices, etc ...)..... Download
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The Commission services seek to identify services of social value in Europe that could benefit from single European freephone numbers starting with 116, and to that end invite interested parties to provide their views, suggestions and relevant information, as described below...... Download
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The Rapsody project objectives are to improve access to, and quality of, fundamental services primarily for patients, families and patients organisations, but also for health professionals. The project is proposed for a period of 24 months and is conceived in order to create new European networks for services which have a specific community added value for European citizens, whether they be patients, families, patient organisations’ representatives or health professionals....... Download
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Welcome to the European Workshop on Help Lines for
Rare Diseases!..... Download
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The Rare Disease Solidarity project has brought together
Rare Disease Help line representatives from all over Europe to
form a network that aims to increase awareness, efficiency
and best practice standards for its members. The group has
been meeting on regular basis since September 2006...... Download
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