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Hereditary Angioedema
For a Patient in Belgium ,I research other french  patient with SCHEIE pathology .Thank you for your answering

Huntington Social issues
Forum dedicated to patients who would like to find out more about the social issues that can arise in the management of a disease like huntington

Osteogenesis imperfecta treatment and care
Osteogenesis imperfecta treatment and care issues and questions?

Hereditary Angioedema
A new product has recently been created for this disease, has anyone else got any information.

Noonan Syndrome
Patient is looking for a patient association. Nothing exixts today in Romania

Huntington respite
patient seeks information about respite centers for huntington patients