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Agrenska is a national centre of competence for rare diseases and its aim is to build not only knowledge but to build competence among target groups. By being a progressive and creative meeting place between needs and knowledge Agrenska contributes to spreading information to target group children, adults and families as well as to professionals. By its method of working in several dimensions:
- nowledge transfer from experts in a number of fields concerned
- Exchange of experiences
- Reflections
The ambition with these programmes is to build competence/capability for life.
Since 1989 Agrenska has developed programmes for children and adults with rare disorders, their families and professionals concerned. Agrenska wishes to contribute and provide knowledge to the families to enhance the coping process. Agrenska strives to develop and make proper tools available to patients suffering from any rare disease, in order to improve their everyday life.
In all out programs, activities and projects, Agrenska has taken the UN Standard Rules into consideration. A unique knowledge is developed within Agrenska through especially The Family Programme.
Agrenska has since 2005 a special consultative status within the UN. It is located on the west coast in Sweden.
Apart from the national centre of competence for rare diseases Agrenska has have other areas: respite care services, DAMP/ADHD consultant and personal
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